SC

Letter: Help Eliza O’Neill

Dear Editor, I know this is not a political issue or hot topic. However, would you please consider tweeting, posting on your site, or helping to get out the story of four-year-old Eliza O’Neill? Eliza has been diagnosed with Sanflippo syndrome that if left untreated will rob her of the…

Dear Editor,

I know this is not a political issue or hot topic. However, would you please consider tweeting, posting on your site, or helping to get out the story of four-year-old Eliza O’Neill? Eliza has been diagnosed with Sanflippo syndrome that if left untreated will rob her of the ability to talk and walk, then cause painful seizures and ultimately kill her.

There is a cure in the form of a gene therapy trial, but if it’s to go forward in time to save Eliza and others who have been diagnosed from permanent neurological damage, the O’Neills need to pump some $2.5 million into the trial, at least a million of which needs to come before the end of June.

Eliza’s go fundme site: http://www.gofundme.com/ElizaONeill. There is also a Facebook page at https://www.facebook.com/ElizaOStory and more information can be found at http://www.curesff.org//.

Time is running out for the first $1 million to be raised by June. Please consider helping to get Eliza’s story out.

Thanks for considering,

-Anonymous

SIC SEZ

sic speaking

Anon … consider it done. And thank YOU for letting us know about this.

Wanna sound off? Send your letter to the editor HERE … 

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4 comments

euwe max April 16, 2014 at 5:52 pm

I hate to politicize this, since I hope everyone who has some discretionary income will help this cause (and all other similar causes)… but the power of individual contributions to onesie twosie causes based on heart strings is dwarfed by the power of a national pool of resources to find cures like this… you know, taxes?

Reply
rebellozit April 17, 2014 at 10:31 am

sad

Reply
euwe max April 17, 2014 at 12:39 pm

I think so.

Reply
Jack April 17, 2014 at 12:50 pm

Indeed it is sad that in the richest nation on earth, with supposedly the “best” health care system, this helpless child is reduced to begging for money from strangers for a chance to live. .

Reply

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